Cronkite News podcast “In Focus” explores what it’s like to be the parent of a child with autism far away from big-city resources. The podcasts follows one family with a four-year-old son who has autism. Read more
One family explains their experience with microcephaly, the birth defect linked with the Zika virus. Read more
Although there have been many campaigns to shut down these kinds of institutions, abuse continues internationally at orphanages where children with disabilities are abandoned. Read more
Continuing The New York Times’ series on disability, a new essay called “Passing My Disability On to My Children” has been published, delving into a complicated issue for parents. Read more
My Heart Can’t Even Believe It, by Amy Silverman
Amy Silverman’s story of “science, love, and Down Syndrome” is out on Amazon. Silverman, an award-winning journalist, shares her evolution from someone who once used words like “retard” and switched lines at the Safeway to avoid a bagger with special needs to raising a child with Down syndrome. The book is both deeply personal and well researched, with information and insights about how people with Down syndrome are treated in medicine, science and culture. Her book is available on Amazon.
Wisdom From a Chair: Thirty Years of Quadriplegia, by Andrew I. Batavia and Mitchell Batavia
Twelve years after his death, the family of Andrew Batavia discovered his unfinished memoir and completed the work. Batavia shares the wisdom he acquired while living with a high-level spinal cord injury and fighting for the civil rights of people with disabilities. Read more about the book here.
A study published in the journal PLOS ONE finds children with developmental disabilities are at risk for wandering away from a safe place, with children with autism the most likely to wander. Read more
Lego introduced its first figurine with a disability–a male who uses a wheelchair–to fanfare. This comes after advocates organized petitions for more diverse figurines from the company. Read more
When a child described to have autism disrupted a performance of “The King and I” this week, actor Kelvin Moon Loh went on Facebook to support the child and their parents after they faced backlash from audience members. Read more
Amy Silverman, managing editor of the Phoenix New Times, an alternative newspaper owned by Village Voice Media, tells radio show “This American Life” how her daughter Sophie, who has Down syndrome, is navigating puberty. In an episode called “Too Soon,” she shares how she found unexpected help for Sophie in the form of a video that she once made fun of. Silverman blogs about raising a daughter with Down syndrome at girlinapartyhat.com. Listen to the episode
Three high school seniors from Phoenix, Arizona, took home first place in their division for C-SPAN’s Student Cam 2015 documentary competition. “An IDEA for Tomorrow,” produced by Severiano Romo, Alexis Rainery and Molly Kerwick of the Metropolitan Arts Institute, showcases the single piece of federal legislation governing the education of children with disabilities– IDEA, the Individuals with Disabilities Education Act.