NCDJ advisory board member Beth Haller will host a webinar on the TV representation of people with disabilities on April 5. A disability and media scholar, Haller will talk about the rise of TV shows including ABC’s “Speechless.” Read more
AP: Hate-crime charges filed in attack on mentally disabled man
“Police spokesman Anthony Guglielmi said investigators initially concluded that the 18-year-old man was singled out because he has “special needs,” not because he was white. But authorities later said the charges resulted from both the suspects’ use of racial slurs and their references to the victim’s disability.” Read more
With all the discussion about groups of voters that potentially could be left out in this November’s election, one disenfranchised group has gotten less attention — disabled voters. These voters often can’t get into their polling place or can’t use their local voting systems. More than 34 million U.S. voters — one in six of all voters — has a disability. According to figures from American Association of People with Disabilities, in 2012, nearly a third of people with disabilities reported difficulty in voting, compared with 8 percent of people without disabilities.
Because these stories often fly under the radar, there are lots of opportunities for unique reporting and breaking news that can make a difference. Below is a guide to the laws, the issues and some resources for digging deeper on disability issues around voting.
Several laws cover voting accessibility and rights for disabled voters:
Americans with Disabilities Act: Title II of the ADA requires that state and local governments ensure people with disabilities have a full and equal opportunity to vote
Voting Rights Act of 1965 requires election officials to allow a voter who is blind or has another disability to receive assistance from a person of the voter’s choice.
Voting Accessibility for the Elderly and Handicapped Act of 1984 requires accessible polling places in federal elections for elderly individuals and people with disabilities. Where no accessible location is available to serve as a polling place, voters must be provided an alternate means of voting on Election Day.
National Voter Registration Act of 1993 requires all offices that provide public assistance or state-funded programs that primarily serve persons with disabilities to also provide the opportunity to register to vote in federal elections.
Help America Vote Act of 2002 requires jurisdictions responsible for conducting federal elections to provide at least one accessible voting system for persons with disabilities at each polling place in federal elections. The accessible voting system must provide the same opportunity for access and participation, including privacy and independence that other voters receive.
Inaccessible polling places: Everything from lack of accessible parking to the inability for people with mobility problems to enter a polling place, make it difficult for disabled voters. A helpful overview of what polling places should do is in an ADA.gov checklist for accessibility at polling places.
To find people who may have encountered voting problems, contact your local Center for Independent Living.
Also, don’t assume that data about accessible polling places is correct. Audits show that polling places that are tagged as accessible often are not.
Until fairly recently, blind voters needed to take an assistant into the voting booth with them to cast a ballot. Organizations representing blind voters have pushed for use of technology that would allow them to vote on their own. Every polling place should have at least one accessible voting machine. AAPD’s Jim Dickson is a great resource on accessible voting.
Poll worker training
Many of these problems are made worse, when poll workers are not educated about how to deal with disabled voters and what they must do to accommodate them. Paraquad, an Independent Living Center in the St. Louis metropolitan area outlined 10 problems with accessible voting, many of those related to lack of training for poll workers.
Disability rights advocate Tony Coelho speaks at a disability council event at this year’s Democratic National Convention. (Lily Altavena/NCDJ)
Tony Coelho is a former congressman from California who is the primary author of the Americans with Disabilities Act of 1990, which sought to end discrimination against those with disabilities. He has advocated for disability rights for almost three decades. Coelho has served as a judge for the National Center on Disability and Journalism’s annual contest recognizing the best reporting on disability around the world.
1. Coelho has had epilepsy since he was a teenager. The stigma it carried dashed his dream of becoming a Catholic priest.
“(When) John F. Kennedy got assassinated, it really hit me really, really hard. … I decided that I wanted to devote my life to helping people and not become a lawyer and gave up my plans. And so at the end of my senior year, to the shock of my girlfriend of five years and my fraternity brothers, I decided I wanted to become a priest…”
“(But my family is) Portuguese and devout Catholics, and they believed, as part of the culture, that if I had epilepsy I was possessed by the devil. Because the Catholic church in 400 A.D. amended Canon law to say if you have epilepsy you’re possessed by the devil; you can’t be a Catholic priest. So the association between epilepsy and possession has been going on for hundreds of years, and it’s true in a lot of cultures.”
2. A young Coelho seeks a job … and a purpose
“(In college) I was student body president and had great grades, and I had all of these job (prospects after graduating). But when I filled out the job applications, I never got a call back because on every application, was the word epilepsy, and I marked it…”
“I finally got a job at a liquor store selling liquor, and little old ladies on social security would come in and get their half-pint of liquor, and I just couldn’t take it. I quit, but I couldn’t get another job, so I started really entering depression, feeling sorry for myself and I started drinking a lot. I would go to a hill in Griffith Park, which is a big park in Los Angeles, and I’d go to this hill and I’d get drunk every day by 2 o’clock on this hilltop. I became suicidal, and on the one day where I was really in bad shape … I heard a voice. … There was a merry-go-round, which I had never seen before. I turned around, the merry-go-round was there, music playing, little kids getting off and on the merry-go-round (and) the voice said to me, ‘You’ll be just like those little kids. You’re never going to let anybody or anything ever stop you from doing what you want to do.’ I was very relieved. I’ve never been depressed again. I’ve never been suicidal again. I drink, but I don’t drink to comfort my sorrows.”
3. Comedian Bob Hope, whom he met through a friend, changes the course of his life.
“I got to be very close with Mr. Hope, and he said — one day we were in a car traveling — and he says, ‘Look, you know what your problem is? You feel you have a ministry, and you think a ministry can only be practiced in a church. A true ministry is practiced in sports, entertainment, in business, in government. And where you belong is in politics, not government. You belong in politics; that’s where you belong.’ I had never thought about it. I wrote a letter to my congressman, who I didn’t know, and got a staff job and worked for my congressman for about 14 years (eventually being promoted to chief of staff). Bob Hope … he’s the one who guided me into my future…
It (politics) became my ministry. I loved to have an impact. And so when (the congressman) retired, he wanted me to take his place. I ran, got elected and decided that’s what I wanted to do. … I was committed to making a difference in that district.”
4. After getting elected to Congress, Coelho makes disability policy a priority.
“My passion was going to be disabilities — and primarily epilepsy. And what I thought of is that with all I’ve been through. I wanted to make sure that other young people didn’t have to go through (the same). So what I would do is, I would amend a housing bill or I would amend a transportation bill (to try to help people with disabilities). But then I realized that wasn’t really doing any good because the real issue was that those of us with disabilities didn’t have our basic civil rights. We had no right to sue anybody, to challenge anybody who discriminated against us. If you went to a restaurant and you were sight-impaired, couldn’t read the menu, and you asked for help, they had a right legally to kick you out with no recourse. If you went to a movie theater and you were in a wheelchair, they had a right to kick you out legally because you could be a fire hazard. If you went for a job, an interview, and they knew that you had a disability they could see or suspect, they had a right to openly deny you employment and say it was because of your disability. So that’s when I started thinking of the ADA (the Americans with Disabilities Act).”
5. Coelho believes the 2016 presidential election could be a turning point for Americans with disabilities.
“For us (Americans with disabilities), this is a critical, critical election. Obamacare provides a requirement that the insurance companies can’t consider pre-existing conditions. That’s a huge issue for people like me, with my epilepsy, and millions of others with disabilities who were denied insurance because of their pre-existing conditions. And now that’s illegal. … We’ve made great advancements in disabilities, and this could all be reversed…
My biggest concern about (Republican presidential candidate Donald) Trump is that he has brought hate back. Mocking the New York Times reporter. Making fun of the contributor on Fox News. Implying that Hillary, because she jerked back from the microphone, was having seizures. He has, in effect, said it’s OK to make fun of those of us with disabilities…
When Hillary had her convention, every night the speakers talked about disabilities. Bill Clinton, (Barack) Obama, Michelle (Obama), (Joe) Biden — all talked about disabilities, in every one of their speeches. In the past, if disabilities were mentioned once at a speech in a convention, we’d get all excited. If we got mentioned once in the platform, we were excited. And it was generally a milk-toast thing about protecting people with disabilities. This platform had us mentioned 35 times in 19 different sections. It’s unheard of.”
6. Building a political movement for people with disabilities goes beyond this year’s presidential election.
“We’re a huge community and we’ve been ignored politically and, as a result of being ignored, we’ve not had the political influence in order to argue our cases in regard to legislation, regulations and so forth. And so, all of a sudden, this year we have gotten together money, participated in policy development, participated in social media, gotten aggressively involved in every aspect of the presidential campaign. So my whole goal in trying to get this started is to get us at the table politically. … And I also feel that because we’ve been so engaged, so involved, disabilities are front-and-center every day now, that people running for governor, running for Senate, running for the presidency next time around will all talk about disabilities.
(Coelho serves on the board of RespectAbility, a disability advocacy organization that queried the 2016 presidential candidates on their positions on disability.)
“RespectAbility had its questionnaire sent out to presidential candidates … and the response from both parties has been tremendous. Everybody feels they have to fill it out. That’s a huge change. Four years ago, they would have ignored it. But because we’ve come into the political game and we have credibility in the political game, the press is paying attention. I would like to see the press acknowledge just the impact that the disability community can have.”
7. Coelho’s goal is to make people look at disability differently.
“What I went through as a youngster — that scar tissue is still there. It is a passion with me to try to help others who have disabilities to not be mistreated — to be given the opportunity to go with their God-given abilities as opposed to people looking at their disability and in effect dissing them because of it…
All my life, I’ve devoted at least 50 to 60 percent of my time trying to make a difference in the lives of those with disabilities. And I feel very blessed, and I thank God for my epilepsy because it made me kind of who I am and (showed me) how I could make a difference.”
United Cerebral Palsy offers a report with a state-by-state examination of community living services for those with intellectual and developmental disabilities. The report delves into waiting lists people with disabilities often face. Read more
NCDJ is publishing this list in conjunction with an updated style guide intended for journalists and members of the general public who are seeking the appropriate and accurate language to use when writing or talking about people living with disabilities.
What is considered acceptable language regarding disabilities has changed dramatically over time, and standards continue to adapt as understanding and perceptions evolve. Many of the terms below were once widely used and were not always considered offensive, but now are widely considered to imply inferiority or have other negative connotations. Others are outdated medical or colloquial term
Afflicted with: Implies that a person with a disability is suffering or has a reduced quality of life. See entry on afflicted.
Able-bodied: Refers to a person who does not have a disability. The term implies that all people with disabilities lack “able bodies” or the ability to use their bodies well. See able-bodied entry.
Confined to a wheelchair: Describes a person only in relationship to a piece of equipment designed to liberate rather than confine. See wheelchair entry.
Crazy, insane, nuts, psycho: All are considered offensive and should not be used except in direct quotes. See mental health.
Deaf and dumb/deaf-mute: Avoid these terms as they are often used inaccurately and can be offensive. See deaf and dumb/deaf-mute entry.
Defect, birth defect, defective: Avoid these terms when describing a disability because they imply the person is somehow incomplete or sub-par. See entry on congenital disability.
Demented, senile: Avoid describing someone as being demented or senile. Use people-first language when describing someone with dementia, such as “a person with dementia.” See entry on dementia/senility.
Epileptic fit: The term seizure is preferred when referring to the brief manifestation of symptoms common among those with epilepsy. Avoid stating that the person had a fit or an epileptic fit. See entry on epilepsy/epileptic fit.
Loony, loony bin, lunatic: All are considered offensive and should not be used except in direct quotes. See mental health entry.
Schizophrenic: Use people-first language, stating that someone is “a person with schizophrenia” or “a person diagnosed with schizophrenia” rather than a schizophrenic or a schizophrenic person. See entry on Schizophrenia/schizophrenic.
Spastic or a spaz. It is acceptable to refer to someone as having spastic cerebral palsy, but it is derogatory to refer to someone as spastic or a spaz. See entry on cerebral palsy.
Stricken with, suffers from, victim of: These terms carry the assumption that a person with a disability is suffering or has a reduced quality of life. See entry on afflicted with.
Vegetable: Use people-first language, such as “a person in a vegetative state.” Avoid referring to someone as a vegetable or “veg” as such words dehumanize the person. See entry on vegetative state/comatose/non-responsive.
NPR’s Marketplace explores “The Cost of Criminalizing Disability” and the rising concern over police action impacting those with disabilities. The cost to families trying to keep a loved one from being arrested and thrown into jail, the article reports, can be high–even unattainable for some. And the cost for incarceration may ultimately fall to taxpayers. Read more
The New York Times features a Sunday Opinion essay from Rosemarie Garland-Thomson, discussing the absence of traction in an organized disability pride movement. She writes, “We have a much clearer collective notion of what it means to be a woman or an African-American, gay or transgender person than we do of what it means to be disabled.” The Times writes that it will be a weekly series about disability. Read more
The Reynolds Center for Business Journalism offers advice on using census data to help reporting on disability and businesses that serve those with disabilities. The detailed post explains how to correctly analyze the data and provides story ideas for journalists. Read more