legal

Mom of daughter with Down Syndrome and heart defect fights transplant discrimination

Jackie Ward is the mother of a three-year-old daughter with Down Syndrome and a heart defect. She recently became an advocate for disability rights after experiencing discrimination from doctors while applying for a heart transplant for her daughter. Ward is now teaming up with Ohio state legislators to pass laws that will give applicants with disabilities more leverage. Check out this article and video interview with Jackie Ward from the Columbus Dispatch.

“A 2008 survey by researchers at Stanford University found that 85 percent of pediatric transplant centers consider neuro-developmental status in the eligibility process at least some of the time, Hansen said. And in the same study, 62 percent of the centers said eligibility decisions based on disability tended to be made informally, making discrimination difficult to show.”

 

Elderly at risk for asset seizure by government “guardians”

An investigative report by Rachel Aviv in The New Yorker reveals how elderly citizens can become involuntary victims of private government contractors hired to manage their financial assets. The ambiguous mental health of some elderly patients exacerbates their ability to defend their possessions and right to autonomy.

SCOTUS Tightens Rules on Intellectual Disability, Death Penalty

The Supreme Court rules that the state of Texas cannot rely on a dated definition of intellectual disability in deciding who receives the death penalty. In the opinion, Justice Ruth Bader Ginsburg wrote, “Adjudications of intellectual disability should be ‘informed by the views of medical experts.” Read more