If a hospital fails to identify symptoms of a debilitating disease in infants it could spell disaster for patients as they grow up. In her story “Doomed by Delay,” Chicago Tribune investigative journalist Patricia Callahan describes the struggles of parents of children with Krabbe disease who weren’t properly diagnosed until it was too late to salvage their motor functions. Callahan is the 1st place co-winner, along with Michael J. Berens, of the NCDJ’s 2017 Katherine Schneider Award for Disability Journalism.
18-year old Tyneisha Wilder spoke to Pittsburgh’s Public Source about her desire to care for her child, who was taken from her by the county Children, Youth and Families office shortly after birth. Wilder has been diagnosed with an intellectual and developmental disability. To remain together, she must find a family to adopt both her and her son within 3-months. Read more.
A story in New York Magazine explores the question, “how intelligent do you have to be to raise a child?”, telling the story of a woman with an intellectual disability who fought to regain custody of her child. Read more
The mother of an 18-year-old man with a learning disability is lobbying New York education officials to make changes to its policies, so her son can receive his high school diploma. Her fight is just one of many, illustrating how parents of those with disabilities often have to advocate their children “get the services they require.” Read more
Boys born prematurely are more likely to be at risk of disability than girls, according to new reports from the “Pediatric Research” journal. The research papers, funded by the Bill and Melinda Gates Foundation, concluded that baby boys have a higher likelihood of infections, jaundice, birth complications and congenital conditions in general but the biggest risk was preterm birth. The findings were published to coincide with the third annual World Prematurity Day on Sunday, Nov. 17. Read more.
Love is blind inside the two-story brick house on Mulligan Avenue. And that is why the microwave buttons are marked with Braille. The clocks in the home all announce the time. And at 7:15 a.m., everyone is listening carefully for the school bus.