Experts List

The following is a list of sources with expertise in a range of disability issues. They have agreed to respond to reporters’ questions and make themselves available for interviews.

Stephanie Alves

 

Steve Doig

  • Title: Knight Chair in Journalism at the Walter Cronkite School of Journalism and Mass Communication Arizona State University
  • Expertise: Americans with Disabilities Act (ADA) and other disability civil rights issues; the legalization of assisted suicide (opposed by DREDF)
  • Location: Phoenix, AZ
  • Email: steve.doig@asu.edu
  • Website:  Arizona State University Faculty Bio

 

Bill Gaventa

  • Title: Coordinator, Community and Congregational Supports; Associate Professor of Pediatrics
  • Organization: The Elizabeth M. Boggs Center on Developmental Disabilities
  • Expertise: Religion/spirituality and disability. Community living and supports, inclusion in community settings, including congregations.
  • Minor areas of expertise: Workforce development, self-directed supports, end-of-life issues and developmental disabilities.
  • Location: New Brunswick, NJ
  • Phone: (732) 235-9304
  • Fax: (732) 235-9330
  • Email: gaventwi@umdnj.edu
  • Website: rwjms.umdjn.edu/boggscenter/

 

Marilyn Golden

  • Title: Policy Analyst
  • Organization: Disability Rights Education and Defense Fund (DREDF)
  • Expertise: Americans with Disabilities Act (ADA) and other disability civil rights issues; the legalization of assisted suicide (opposed by DREDF)
  • Location: Berkeley, CA
  • Phone: (510) 549-9339
  • Fax: (510) 549-9449
  • Email: mgolden@dredf.org
  • Website: www.dredf.org

 

Tamie Hopp

  • Title: Director of Government Relations & Advocacy
  • Organization: VOR
  • Expertise: Americans with Disabilities Act (ADA) as interpreted by the Olmstead v. L.C. decision and other federal disability laws; the impact of deinstitutionalization; state trends. Contacts with family advocates, attorneys and others in involved in disability advocacy across the country.
  • Phone: (605) 399-1624
  • Email: thopp@vor.net
  • Website: www.vor.net

 

Heidi Johnson-Wright

  • Title: Americans with Disabilities Act Coordinator
  • Organization: City of Miami Beach
  • Expertise: Title II ADA Compliance (both programmatic and facilities); issues involving people with physical disabilities, especially wheelchair users; disability issues involving local governments.
  • Location: Miami Beach, FL
  • Phone: 786-564-5160
  • E-mail: hjohnsonwright@yahoo.com

 

Valerie Karr

  • Title: Director for Research Programs
  • Organization: Victor Pineda Foundation
  • Expertise: Child education and public awareness strategies and campaigning, with a strong clinical background in special education and a track record of effective advocacy both nationally and internationally in the area of disability rights.
  • Location: Garden City, NY
  • Phone: (516) 877-4091
  • Email: vkarr@adelphi.edu
    Website: www.pinedafoundation.org

 

Jay Klein

  • Title: Associate Clinical Professor in the Arizona State University School of Social Work in the College for Public Programs
  • Expertise: Leader and educator in efforts to include people with disabilities in community life and help translate professional practices into everyday realities for all people.
  • Email: jay.klein@asu.edu

 

Simi Linton, Ph.D.

  • Title: Writer, filmmaker and disability/arts consultant
  • Expertise: disability and the arts, disability studies as a field of inquiry, conventions of language, disability activism and disability rights.  The author of Claiming Disability: Knowledge and Identity, and the memoirMy Body Politic, and a producer and director of the forthcoming documentary film Invitation to Dance
  • Location: New York, NY
  • Phone: (646) 281-1504
  • Email: simi4@yahoo.com
  • Website: www.similinton.com

 

Tim McGuire

  • Title: Frank Russell Chair for the Business of Journalism at the Walter Cronkite School of Journalism and Mass Communication, Arizona State University
  • Expertise: Parenting of a child with disabilities, disability and spirituality, disability and ethics.
  • Email: tim.mcguire@asu.edu

 

Susan Parish

  • Title: Nancy Lurie Marks Professor of Disability and Director, Lurie Institute for Disability Policy at The Heller School for Social Policy and Management, Brandeis University
  • Also the Director of the Doctoral Progam in Social Policy at The Heller School for Social Policy and Management
  • Expertise: Children with autism, disability policy, poverty policy, health of children and adults with disabilities, racial disparities in health care access, poverty and disability.
  • Location: Waltham, MA
  • Phone: (781) 736-3928
  • Email: slp@brandeis.edu

 

Victor Pineda

  • Title: President
  • Victor Pineda Foundation
  • Expertise: Nationally recognized expert on disability policy. Founded California’s first Disability Media Center. Has worked for the U.S. Department of the Treasury in evaluating development policy and foreign aid.
  • Location: Los Angeles, CA
  • Phone: 310-467-4556
  • E-Mail:  victor@pinedafoundation.org

 

Irene Richard

  • Title: Movement disorder neurologist and researcher, and an investigating senior medical adviser to the Michael J. Fox Foundation
  • Organization: University of Rochester
  • Expertise: Parkinson’s Disease, and its mental and emotional aspects
  • Location: Rochester, NY
  • Phone: 585-275-7937
  • E-Mail: irene_richard@urmc.rochester.edu

 

Darrell Shandrow

  • Expertise: Blindness, accessibility, technology, IT, software.
  • Organization: Blind Access Journal
  • Website: blindaccessjournal.com
  • Email: darrell@blindaccessjournal.com
  • Location: Tempe, Arizona

 

Eleanor Smith

  • Title: Director
  • Organization: Concrete Change
  • Expertise: Basic access in all new houses, i.e. Forming and implementing policy to change the new house construction norm from the current lack of any access features to routine inclusion of basic access in all new houses.  This movement is variously known as ‘Inclusive  Home Design’ ‘Visibility’ or ‘Basic Home Access’ It emphasizes the access features most important for people with mobility impairments to visit or reside in a house – at least one zero-step entrance, ample interior doors widths and access to a bathroom.
  • Location: 600 Dancing Fox Road, Decatur, GA 300320
  • Phone: 404-378-7455
  • E-mail: concretechange@mindspring.com
  • Website: http://www.ConcreteChange.org/

 

Paul Thompson

  • Title: Professor of Neurology
  • Organization: University of California-Los Angeles
  • Expertise: Schizophrenia research
  • Location: Los Angeles, CA
  • Phone: 310-206-2101
  • E-Mail: Thompson@loni.ucla.edu

 

Christina Vorndran

  • Title: Senior Clinical Director, Developmental Disabilities Programs
  • Bancroft (non-profit organization focusing on children with disabilities)
  • Expertise: Vorndran is a board-certified behavior analyst and a New Jersey certified school psychologist, with particular expertise in children with autism and other developmental disabilities.
  • Location: Haddonfield, NJ
  • Phone: 856-524-7032
  • E-Mail: vorndran@rowan.edu