Olmstead decision turns 20

[Video courtesy of EquipforEquality / YouTube]

Twenty years have passed since the Olmstead decision by the Supreme Court, which found that people with disabilities have a right to receive services outside of institutions, and to be fully integrated in their communities.

Background

The 1999 Olmstead v. L.C. decision fundamentally changed the lives of Lois Curtis and Elaine Wilson, who had both been institutionalized and living in isolation for an extended period of time after they had been voluntarily admitted into a state-run psychiatric unit for treatment. Even after mental healthcare providers approved their release, Curtis and Wilson were, essentially, stuck in the institution.

The Case

In a first-of-its-kind use of the ADA–which was less than a decade old–Curtis and Wilson filed a lawsuit. The result was a landmark decision by the Supreme Court, which found that confining individuals “greatly diminishes the everyday life activities of individuals, including family relations, social contacts, work options, economic independence, educational advancement, and cultural enrichment.”

Olmstead Impact

Since the Olmstead decision in 1999, many people have been freed from institutions and have a legal right to live where they want to live.

Listen to Ruth Bader Ginsburg deliver the majority opinion for the court:

Disability rights activist Carrie Ann Lucas’ tragic and unnecessary death

Photo of the late disability rights advocate Carrie Ann Lucas.
A photographic portrait of the late disability rights advocate Carrie Ann Lucas. (Photo: Carrie Ann Lucas’s Facebook page)

Carrie Ann Lucas, a disability rights activist, died in late February because her health insurer declined to pay for her necessary medication.

When a cold turned into a lung infection in January 2018, Lucas, who was ventilator-dependent, needed antibiotics, but her insurer balked at the cost of the most effective medication available, setting off a cascade of events that left her in ill health for much of 2018.

While a New York Times obituary praised Carrie Ann Lucas for her many achievements as an advocate and activist, the obit did not mention the real cause of her death.

Read Carrie’s story here.