State Rep. Jennifer Longdon, D-Phoenix, was one of eight legislators, advocates and medical professionals who shared sobering stories about the costs of gun violence at a congressional hearing last week in an effort to urge members of the House Ways and Means committee to take legislative action on gun control.
Longdon is paralyzed from the chest down, and her ex-fiancé lives with brain trauma and blindness, after they were struck by five stray bullets as bystanders during a 2004 shooting.
Click here to continue reading Megan U. Boyanton’s story on Cronkite News / Arizona PBS about Longdon’s participation in the hearing, which took place as Democrats press for action on gun-control bills in the wake of mass shootings that took dozens of lives in August.
Marca Bristo, one of the most influential advocates for people with disabilities in the U.S., died on Sunday morning after a long battle with cancer. She was 66.
After becoming paralyzed in a diving accident at 23, Bristo dedicated her life to disability rights advocacy and worked tirelessly to secure legal protections and improve quality of life measures for people with disabilities.
Among her many achievements, Bristo played a significant role in getting the Americans with Disabilities Act (ADA) passed. She also founded Access Living in Chicago, a nonprofit that promoted independent living, and in 1993 she was appointed by President Clinton to lead the National Council on Disability. She provided strategic leadership to the organization in that role until 2002.
Click here to read Marca Bristo’s full obituary in the New York Times.
Under a law that took effect today, the state of Arizona can charge the city Flagstaff for added costs to state contracts that will occur as a result of the city’s newly-implemented minimum wage increase. Many care providers cannot shoulder this added cost, however, as they already struggle to pay their employees due to insufficient state funding for their services. Unable to pay more than minimum wage, many companies cannot keep a steady workforce of caregivers. And with fewer providers, there will be fewer opportunities for people with disabilities.
Click here to read this Cronkite News article online.
E.P.A. Won’t Ban Chlorpyrifos, Pesticide Tied to Children’s Health Problems
By Lisa Friedman
Originally published in the July 18, 2019 edition of the New York Times
In a New York Times article published this week, Lisa Friedman reports that the Trump administration took a major step to weaken the regulation of toxic chemicals on Thursday when the Environmental Protection Agency (E.P.A.) announced that it will not ban chlorpyrifos, a pesticide linked to developmental delays in children. It has also been linked to lung cancer and Parkinson’s disease in adults.
The decision, which was made by E.P.A. administrator Andrew R. Wheeler, represents a win for the chemical industry and for farmers who have lobbied to continue using the toxic chemical despite its potential to cause serious harm.
Although the Obama administration announced in 2015 that it would ban chlorpyrifos after scientific studies produced by the E.P.A. showed the pesticide had the potential to damage brain development in children, the prohibition had not yet been carried out when, in 2017, then-E.P.A. administrator Scott Pruitt reversed Obama’s decision and provoked a wave of lawsuits.
In an article in the June 2019 issue of Phoenix Magazine, NCDJ board member Amy Silverman draws attention to the fact that there aren’t enough resources and support services available in Arizona for families who care at home for loved ones with disabilities. “According to the Arizona Council on Developmental Disabilities, there are 130,000 or so people in that category in Arizona, and almost 90 percent live at home,” Silverman says.
In addition to highlighting the need for better home-care services in the state, the Phoenix Magazine article also highlights Arizona’s failure to investigate the state’s Division of Developmental Disabilities, despite there being scores of formal complaints and well-documented concerns regarding the poor quality of the DDD’s in-home nursing services.
Click here to read Amy Silverman’s Phoenix Magazine article online.
Twenty years have passed since the Olmstead decision by the Supreme Court, which found that people with disabilities have a right to receive services outside of institutions, and to be fully integrated in their communities.
The 1999 Olmstead v. L.C. decision fundamentally changed the lives of Lois Curtis and Elaine Wilson, who had both been institutionalized and living in isolation for an extended period of time after they had been voluntarily admitted into a state-run psychiatric unit for treatment. Even after mental healthcare providers approved their release, Curtis and Wilson were, essentially, stuck in the institution.
In a first-of-its-kind use of the ADA–which was less than a decade old–Curtis and Wilson filed a lawsuit. The result was a landmark decision by the Supreme Court, which found that confining individuals “greatly diminishes the everyday life activities of individuals, including family relations, social contacts, work options, economic independence, educational advancement, and cultural enrichment.”
Since the Olmstead decision in 1999, many people have been freed from institutions and have a legal right to live where they want to live.
Listen to Ruth Bader Ginsburg deliver the majority opinion for the court:
Tom Sietsema, a well-known food critic for the Washington Post, has announced that he will add accessibility information to his restaurant reviews. His decision, as Sietsema explains in a post published earlier this week, was prompted by feedback he’s received from readers, who frequently contact Sietsema to ask about restaurants’ accommodations for people who use wheelchairs, or people who are blind. Sietsema said he initially had concerns about remaining under-the-radar as a restaurant critic “while measuring doorways with a tape measure.” But, upon considering that more than 70,000 Washingtonians live with a disability, Sietsema realized the importance of his obligation to serve his audience.
Click here to read Sietsema’s announcement in the Washington Post.
Arizona Gov. Doug Ducey is ordering three state agencies to do a better job protecting Arizona’s most vulnerable residents. The executive order he issued on Wednesday comes one week after the Arizona Developmental Disabilities Planning Council issued a report calling for the state to implement stronger protections for its residents with disabilities.
Some say the governor’s executive order is a good “first step,” but more work is needed to create policies that adequately protect Arizonans with disabilities who reside in long-term care facilities.
While the recent crisis at Hacienda HealthCare continues to draw attention to problems within Arizona’s current system of monitoring and reporting sexual abuse of people with disabilities, almost no formal policies designed to recognize and prevent such abuse exist. The Council’s report is called “Sexual Abuse of Arizonans with Developmental and Other Disabilities” and it contains specific actions that state agencies and care providers can take to prevent the sexual abuse of vulnerable adults.
In an article for the Arizona Capitol Times, Katie Campbell details changes that are underway to make the Arizona State Capitol building more accessible for not just one new elected official, but all Arizonans. Jennifer Longdon, a presumptive state representative from Legislative District 24, uses a wheelchair and has drawn lawmakers’ attention to areas of the Capitol that are not easily accessible for people who use wheelchairs.
According to Longdon, Campbell writes, “this is just the first step toward making the Capitol more inclusive to everyone, both physically and in the policies that lawmakers craft.” Read the Arizona Capitol Times story here.