The documentary ‘Not Going Quietly’ follows Ady Barken’s exploration of the disabled experience and documents the contribution of disabled activists fighting for universal healthcare. Read more here: https://womensenews.org/2021/09/not-going-quietly-by-losing-his-voice-he-speaks-for-others/
By Liz Essley Whyte, Center for Public Integrity/The Daily Beast
An analysis by the Center for Public Integrity reveals that policies in at least 25 U.S. states have provisions that could de-prioritize health care for people with disabilities if cases of COVID-19 continue to ravage hospitals’ supplies.
Disability advocates have filed formal complaints in several states for their policies on who should get ventilators if hospitals run out. These policies take into account patients’ expected lifespan; need for resources, such as home oxygen; or specific diagnoses, such as dementia. Some policies even permit hospitals to take ventilators away from patients who use them as breathing aids in everyday life, and give the ventilators to other patients.
Twenty-five states have similar provisions in their rationing policies — and many other states either don’t have policies, or aren’t releasing them.
“There is a long history of people with disabilities being devalued by the medical system. That’s why we have civil rights laws,” said disability-rights activist Ari Ne’eman. “We don’t have an exception in our country’s civil rights laws for clinical judgment. We don’t take it on trust.”
By Andrew Pulrang, Rooted in Rights
A friend asks:
“Do you support Medicare For All? Why not? Don’t you believe everyone has a right to health care?”
Your coworker says:
“I think everyone should have healthcare, but how do we pay for it? And even if we can pay for it, how could we ever hope to pass such a huge and controversial plan?”
Meanwhile, your aunt wants to know:
“Do you really want the government in charge of your healthcare? And Is it fair that hardworking, responsible people should have to pay the medical bills for people who don’t even work? I don’t mean you of course …”
These are stereotypes, but nowadays they kind of ring true. They’re the sentiments that every disabled person even slightly engaged in the healthcare debate hears from every corner. That, and accusations of being a shill for “the other side” if you dare to ask critical questions and raise specific concerns as a disabled person. There’s no escape from it either, especially online. Now that 2020 campaigns are underway, you can’t plant a crutch or turn a wheelchair without running into someone’s passionate beliefs about healthcare. And they want you to believe, too. They’ll even point to your disability as a reason why you should support their position on healthcare.
The fact is that people with disabilities do have unique and important priorities that aren’t always addressed in healthcare plans. For people with disabilities, they matter more than ideology, poll-tested rhetoric, or political affiliations. This is the substance of the healthcare debate for the disability community.
Read the rest of Purlang’s article at https://rootedinrights.org/5-things-disabled-people-are-looking-for-in-healthcare-plans-as-the-2020-elections-approach/
Under a law that took effect today, the state of Arizona can charge the city Flagstaff for added costs to state contracts that will occur as a result of the city’s newly-implemented minimum wage increase. Many care providers cannot shoulder this added cost, however, as they already struggle to pay their employees due to insufficient state funding for their services. Unable to pay more than minimum wage, many companies cannot keep a steady workforce of caregivers. And with fewer providers, there will be fewer opportunities for people with disabilities.
Click here to read this Cronkite News article online.
Valentina Gloria, a 19-year-old woman who has been diagnosed with several mental illnesses, has been detained at Maricopa County’s Lower Buckeye Jail for nearly six months, since February of this year. Now Vangelina Gloria, Valentina’s mother, is pleading for her teen daughter’s release.
Some say Valentina’s case exemplifies how our legal system criminalizes mental illness. Her predicament also highlights the ways in which our criminal justice system fails at providing quality mental healthcare to those who need it.
With support from Puente Arizona, a Phoenix-based migrant justice organization, Vangelina wrote a letter to Maricopa County Attorney Bill Montgomery earlier this week, requesting that he drop the charges against Valentina and release her from police custody. According to azcentral.com and court documents, Valentina has been diagnosed with bipolar disorder, paranoia, depression, schizoaffective disorder and post-traumatic stress disorder. Vangelina believes that being in jail is exacerbating her daughter’s mental health condition.
How did Valentina end up in jail?
In December 2018, [Valentina] Gloria was being treated in a behavioral health unit at St. Luke’s Hospital, where she was accused and arrested for spitting and punching two different nurses; she was then charged with two counts of aggravated assault. Then in May, a county judge ruled Valentina was incompetent to face the charges in court and ordered her to stay in jail to receive treatment through the County’s Restoration to Competency Program. A previous Arizona Republic analysis of Maricopa County’s Restoration to Competency Program expressed concerns about the program’s inefficiency and questioned the quality of the jailhouse mental healthcare provided by the county.
Click here to read an azcentral.com article recounting Vangelina’s efforts to secure Valentina’s release.
“Raising Phoenix: Home-Care Woes”
In an article in the June 2019 issue of Phoenix Magazine, NCDJ board member Amy Silverman draws attention to the fact that there aren’t enough resources and support services available in Arizona for families who care at home for loved ones with disabilities. “According to the Arizona Council on Developmental Disabilities, there are 130,000 or so people in that category in Arizona, and almost 90 percent live at home,” Silverman says.
In addition to highlighting the need for better home-care services in the state, the Phoenix Magazine article also highlights Arizona’s failure to investigate the state’s Division of Developmental Disabilities, despite there being scores of formal complaints and well-documented concerns regarding the poor quality of the DDD’s in-home nursing services.
Click here to read Amy Silverman’s Phoenix Magazine article online.
Carrie Ann Lucas, a disability rights activist, died in late February because her health insurer declined to pay for her necessary medication.
When a cold turned into a lung infection in January 2018, Lucas, who was ventilator-dependent, needed antibiotics, but her insurer balked at the cost of the most effective medication available, setting off a cascade of events that left her in ill health for much of 2018.
While a New York Times obituary praised Carrie Ann Lucas for her many achievements as an advocate and activist, the obit did not mention the real cause of her death.
Arizona Gov. Doug Ducey is ordering three state agencies to do a better job protecting Arizona’s most vulnerable residents. The executive order he issued on Wednesday comes one week after the Arizona Developmental Disabilities Planning Council issued a report calling for the state to implement stronger protections for its residents with disabilities.
Some say the governor’s executive order is a good “first step,” but more work is needed to create policies that adequately protect Arizonans with disabilities who reside in long-term care facilities.
One in four Americans is disabled, according to a U.S. Centers for Disease Control and Prevention survey released Thursday “At some point in their lives, most people will either have a disability or know someone who has a one,” Coleen Boyle, director of CDC’s National Center on Birth Defects and Developmental Disabilities, said in a written statement. Read Binghui Huang’s story here.
Former U.S. Treasury economist Ernie Tedeschi wrote a guest column for the New York Times analyzing recent labor force employment data. Tedeschi sourced his information from the Census Bureau’s Current Population Survey and discovered promising signs that people with disabilities are returning to the labor force. Check out Tedeschi’s full report in NYT and readers’ comments about why the trend is occurring.