ableism

3 Ways Disability Allyship Can Go Off Track

April is Autism Acceptance Month. It’s a good time to rethink not only how non-autistic or “neurotypical” people can best support autistic people –– but also how non-disabled people in general can do better in supporting people with any kind of mental, developmental, or physical disability. There’s no shortage of good intentions. Most people if asked would say that they at least want to do right by people with disabilities. But being a good disability ally requires more than goodwill. This article describes three of the most common ways that even the best, most committed disability allies can go wrong.

Read the full article here.

State Policies May Send People with Disabilities to the Back of the Line for Ventilators

Vestavia Hills, Alabama, resident Matthew Foster, who has Down syndrome, holds a sign reading: "I am ventilator worthy! I want the right to live"
Vestavia Hills, Alabama, resident Matthew Foster, who has Down syndrome, worries he could be in the back of the line for a ventilator if he contracts severe COVID-19. Half of states have policies with the type of provisions that advocates say discriminate against people with disabilities. (Photo Courtesy of Susan Ellis)

By Liz Essley Whyte, Center for Public Integrity/The Daily Beast

An analysis by the Center for Public Integrity reveals that policies in at least 25 U.S. states have provisions that could de-prioritize health care for people with disabilities if cases of COVID-19 continue to ravage hospitals’ supplies.

Disability advocates have filed formal complaints in several states for their policies on who should get ventilators if hospitals run out. These policies take into account patients’ expected lifespan; need for resources, such as home oxygen; or specific diagnoses, such as dementia. Some policies even permit hospitals to take ventilators away from patients who use them as breathing aids in everyday life, and give the ventilators to other patients.

Twenty-five states have similar provisions in their rationing policies — and many other states either don’t have policies, or aren’t releasing them.

“There is a long history of people with disabilities being devalued by the medical system. That’s why we have civil rights laws,” said disability-rights activist Ari Ne’eman. “We don’t have an exception in our country’s civil rights laws for clinical judgment. We don’t take it on trust.”

Read the full article here: https://publicintegrity.org/health/coronavirus-and-inequality/state-policies-may-send-people-with-disabilities-to-the-back-of-the-line-for-ventilators/

ASU student explores how disability is talked about on Twitter

The Twitter hashtag #AblesAreWeird highlights the strange things that people do and say to people with disabilities. Image: text that says "AbledsAreWeird" appears against a solid blue background.
The Twitter hashtag #AbledsAreWeird highlights the strange things that people do and say to people with disabilities. Image: text that says “AbledsAreWeird” appears against a solid blue background.

Adam Schmuki, a linguistics graduate student at Arizona State University, studies the language and narratives people use on Twitter to refer to disability. A wheelchair user himself, Schmuki became interested in the subject earlier this year when he came across the hashtag #AbledsAreWeird. The hashtag gained popularity among Twitter’s disability community in late March as a way to normalize people with disabilities, who are often regarded by outsiders as “other.”

Click here to read more about Adam Schmuki’s research on language used to discuss disability on Twitter.

Curious to learn more about disability and language? Check out our disability language style guide, which is available in both English and Spanish.

Arizona legislator Jennifer Longdon has to roll home following late-night budget talks

After a recent legislative session ended at 2 a.m., Rep. Jennifer Longdon, D-Phoenix, a wheelchair user and NCDJ board member, had no choice but to roll 1.5 miles home from the Capitol. Longdon’s difficulty getting home illustrates the lack of accessible public transit options in Phoenix. How can people who rely on public transportation be productive or work late, if needed, in a city that doesn’t have a 24-hour bus system?

Several colleagues and a police officer accompanied Longdon on her roll home, but, as Longdon pointed out, many people with disabilities wouldn’t be able to access the kind of help that she [as an elected state representative] could.

Click here to read more about this news story in the Arizona Republic.


Above: Rep. Jennifer Longdon thanks Phoenix police and tells her colleagues about her travails getting home on May 24, 2019. (Video: Robbie Sherwood / azcentral.com)

Columbia Journalism Review highlights NCDJ disability language style guide

a screen shot of the article's headline on CJR.org.
“How some words don’t stand the test of time,” an article recently published in the Columbia Journalism Review, highlights the NCDJ disability language style guide. Image: a screen shot of the article’s headline on CJR.org.

Thanks for the shout out, Columbia Journalism Review! A recent CJR article about disability terminology mentions our disability language style guide as a resource for journalists and writers who cover disability issues. Click here to read the CJR article online.

#LetUsPlayUs: Blind Americans protest new CW television series “In the Dark”

Above: Mark Riccobono, president of the National Federation of the Blind, is interviewed during the organization’s protest on April 2nd in midtown Manhattan. (Video: SCOOTERCASTER / YouTube)


Members of the National Federation of the Blind (NFB) gathered in midtown Manhattan on April 2nd to protest “In The Dark,” a new television series on the CW network. The purpose of the protest #LetUsPlayUs was to highlight the lack of authentic representation of blind people in the entertainment industry; “In the Dark” features a lead actor who isn’t blind in real life, but who plays the role of a blind person on the show.

In the weeks leading up to the protest, the National Federation of the Blind issued a statement condemning the show and calling for its cancellation. The organization also wrote to the show’s producers and to CW/CBS executives requesting an urgent meeting. The NFB received a response from the show’s executives stating that they are interested in meeting with the NFB after the first season has aired.

You can also listen to NFB President Mark Riccobono recap the protest here.

#LetUsPlayUs on Twitter

How to write better stories on students with disabilities

Image: indianadisabilityawareness.org A poster for the "I'm Not Your Inspiration" awareness campaign by the Indiana Governor’s Council for People with Disabilities. A portrait-style photo of a boy is juxtaposed against an orange backsplash with text that reads: I'm Not Your Inspiration (I'm Your Classmate).
Image: indianadisabilityawareness.org

Posters for the “I’m Not Your Inspiration” awareness campaign by the Indiana Governor’s Council for People with Disabilities. In one, a portrait-style photo of a boy is juxtaposed against an orange backsplash with text that reads: I’m Not Your Inspiration (I’m Your Classmate).

As journalist and NCDJ disability language style guide author Amy Silverman writes, “Disability journalism is a hot beat right now. But just because you’re covering disability doesn’t mean you’re doing it right.”

In a column for Phi Delta Kappan, a professional journal for teachers, Silverman discusses the challenges of reporting in schools and the ways in which journalists still far short when it comes to telling relevant and nuanced stories about people with disabilities. Read more of Amy Silverman’s column online.

Learn about the concept of “inspiration porn” in this video of journalist and comedian Stella Young’s talk at TEDxSydney: