By NCDJ board member Amy Silverman, for ProPublica/Arizona Daily Star
Advocates for people with intellectual disabilities are concerned that people with Down syndrome, cerebral palsy, autism and other such conditions will be denied access to lifesaving medical treatment as the COVID-19 outbreak spreads across the country.
As Silverman reports, several disability advocacy organizations filed complaints this week with the civil rights division of the U.S. Department of Health and Human Services, asking the federal government to clarify provisions of the disaster preparedness plans for the states of Washington and Alabama.
Some state plans — including Alabama’s — make clear that people with cognitive issues are a lower priority for lifesaving treatment. Alabama’s plan reads that “persons with severe mental retardation, advanced dementia or severe traumatic brain injury may be poor candidates for ventilator support.”
While the recent crisis at Hacienda HealthCare continues to draw attention to problems within Arizona’s current system of monitoring and reporting sexual abuse of people with disabilities, almost no formal policies designed to recognize and prevent such abuse exist. The Council’s report is called “Sexual Abuse of Arizonans with Developmental and Other Disabilities” and it contains specific actions that state agencies and care providers can take to prevent the sexual abuse of vulnerable adults.
Hospitals frighten many patients but they can be especially confusing and traumatic for people with dementia. According to a story for the Boston Globe by Felice J. Freyer, hospitals in Massachusetts are making an effort to better accommodate patients with memory loss. Freyer reports that the loud, high-tech hospital environment is disorienting to patients with “fragile minds,” and staff frequently rely on sedatives to calm confused patients. Freyer interviewed family caregivers, Alzheimer’s advocacy groups and hospital executives to learn more about the problem and how hospitals are making improvements.