The New York Times Parenting section recently featured an essay by NCDJ Board member and journalist Amy Silverman, who elucidates the challenges parents face when it comes to choosing the right school for kids with disabilities. Silverman discusses what it was like to transition her daughter Sophie, who has Down syndrome, into a local elementary school and describes navigating red tape and school administrators to ensure Sophie would receive support services suited to her needs.
The article also mentions that it is important for parents of children with disabilities to understand the Individuals with Disabilities Education Act and provides a link to an overview of the federal law.
In an article in the June 2019 issue of Phoenix Magazine, NCDJ board member Amy Silverman draws attention to the fact that there aren’t enough resources and support services available in Arizona for families who care at home for loved ones with disabilities. “According to the Arizona Council on Developmental Disabilities, there are 130,000 or so people in that category in Arizona, and almost 90 percent live at home,” Silverman says.
In addition to highlighting the need for better home-care services in the state, the Phoenix Magazine article also highlights Arizona’s failure to investigate the state’s Division of Developmental Disabilities, despite there being scores of formal complaints and well-documented concerns regarding the poor quality of the DDD’s in-home nursing services.
Click here to read Amy Silverman’s Phoenix Magazine article online.
Celebrities and wealthy parents involved in the college admissions bribery scheme which recently made headlines took advantage of testing accommodations meant for students with disabilities, federal authorities say. According to court documents, the parents were instructed to lie in order to secure extra time and a private room for their kids to take the SAT or ACT. The parents were told to falsely claim that their children had learning disabilities–and to obtain the necessary medical documentation for proof.
For students with learning disabilities, there is often a discrepancy between academic performance and their intelligence. Advocates for students with learning disabilities believe the scandal could make it harder for students with actual learning disabilities to get the test-taking accommodations they need.
If a hospital fails to identify symptoms of a debilitating disease in infants it could spell disaster for patients as they grow up. In her story “Doomed by Delay,” Chicago Tribune investigative journalist Patricia Callahan describes the struggles of parents of children with Krabbe disease who weren’t properly diagnosed until it was too late to salvage their motor functions. Callahan is the 1st place co-winner, along with Michael J. Berens, of the NCDJ’s 2017 Katherine Schneider Award for Disability Journalism.
18-year old Tyneisha Wilder spoke to Pittsburgh’s Public Source about her desire to care for her child, who was taken from her by the county Children, Youth and Families office shortly after birth. Wilder has been diagnosed with an intellectual and developmental disability. To remain together, she must find a family to adopt both her and her son within 3-months. Read more.
A story in New York Magazine explores the question, “how intelligent do you have to be to raise a child?”, telling the story of a woman with an intellectual disability who fought to regain custody of her child. Read more
The mother of an 18-year-old man with a learning disability is lobbying New York education officials to make changes to its policies, so her son can receive his high school diploma. Her fight is just one of many, illustrating how parents of those with disabilities often have to advocate their children “get the services they require.” Read more