law

State Policies May Send People with Disabilities to the Back of the Line for Ventilators

Vestavia Hills, Alabama, resident Matthew Foster, who has Down syndrome, holds a sign reading: "I am ventilator worthy! I want the right to live"
Vestavia Hills, Alabama, resident Matthew Foster, who has Down syndrome, worries he could be in the back of the line for a ventilator if he contracts severe COVID-19. Half of states have policies with the type of provisions that advocates say discriminate against people with disabilities. (Photo Courtesy of Susan Ellis)

By Liz Essley Whyte, Center for Public Integrity/The Daily Beast

An analysis by the Center for Public Integrity reveals that policies in at least 25 U.S. states have provisions that could de-prioritize health care for people with disabilities if cases of COVID-19 continue to ravage hospitals’ supplies.

Disability advocates have filed formal complaints in several states for their policies on who should get ventilators if hospitals run out. These policies take into account patients’ expected lifespan; need for resources, such as home oxygen; or specific diagnoses, such as dementia. Some policies even permit hospitals to take ventilators away from patients who use them as breathing aids in everyday life, and give the ventilators to other patients.

Twenty-five states have similar provisions in their rationing policies — and many other states either don’t have policies, or aren’t releasing them.

“There is a long history of people with disabilities being devalued by the medical system. That’s why we have civil rights laws,” said disability-rights activist Ari Ne’eman. “We don’t have an exception in our country’s civil rights laws for clinical judgment. We don’t take it on trust.”

Read the full article here: https://publicintegrity.org/health/coronavirus-and-inequality/state-policies-may-send-people-with-disabilities-to-the-back-of-the-line-for-ventilators/

U.S. Department of Transportation clarifies rules regarding air travel and service animals

DOT releases new guidelines for Service Dogs on flights
Image: A service dog walks with its owner through an airport terminal. (Photo: DoD News | Flickr)

Last Thursday, the U.S. Department of Transportation (DOT) released a Final Statement of Enforcement Priorities Regarding Service Animals that clarifies rules governing service animals on flights for passengers, airlines, and other stakeholders involved in commercial air travel. The statement also specifies the department’s enforcement priorities, clarifies service animal species limitations, and lists the specific situations in which it is required for handlers to provide official documentation to the airline before boarding.

Access a summary of the new rules and enforcement priorities on the Department of Transportation website.

EPA won’t ban chlorpyrifos, a pesticide linked to kids’ developmental disabilities

chemical structure of the insecticide chlorpyrifos
Image: a stock illustration portraying the chemical structure of the insecticide chlorpyrifos.

E.P.A. Won’t Ban Chlorpyrifos, Pesticide Tied to Children’s Health Problems

By Lisa Friedman

Originally published in the July 18, 2019 edition of the New York Times

 

In a New York Times article published this week, Lisa Friedman reports that the Trump administration took a major step to weaken the regulation of toxic chemicals on Thursday when the Environmental Protection Agency (E.P.A.) announced that it will not ban chlorpyrifos, a pesticide linked to developmental delays in children. It has also been linked to lung cancer and Parkinson’s disease in adults.

The decision, which was made by E.P.A. administrator Andrew R. Wheeler, represents a win for the chemical industry and for farmers who have lobbied to continue using the toxic chemical despite its potential to cause serious harm.

Although the Obama administration announced in 2015 that it would ban chlorpyrifos after scientific studies produced by the E.P.A. showed the pesticide had the potential to damage brain development in children, the prohibition had not yet been carried out when, in 2017, then-E.P.A. administrator Scott Pruitt reversed Obama’s decision and provoked a wave of lawsuits.

Click here to read the article online.

Olmstead decision turns 20

[Video courtesy of EquipforEquality / YouTube]

Twenty years have passed since the Olmstead decision by the Supreme Court, which found that people with disabilities have a right to receive services outside of institutions, and to be fully integrated in their communities.

Background

The 1999 Olmstead v. L.C. decision fundamentally changed the lives of Lois Curtis and Elaine Wilson, who had both been institutionalized and living in isolation for an extended period of time after they had been voluntarily admitted into a state-run psychiatric unit for treatment. Even after mental healthcare providers approved their release, Curtis and Wilson were, essentially, stuck in the institution.

The Case

In a first-of-its-kind use of the ADA–which was less than a decade old–Curtis and Wilson filed a lawsuit. The result was a landmark decision by the Supreme Court, which found that confining individuals “greatly diminishes the everyday life activities of individuals, including family relations, social contacts, work options, economic independence, educational advancement, and cultural enrichment.”

Olmstead Impact

Since the Olmstead decision in 1999, many people have been freed from institutions and have a legal right to live where they want to live.

Listen to Ruth Bader Ginsburg deliver the majority opinion for the court:

Arizona Gov. Doug Ducey issues executive order to improve protections for people with disabilities

Page two of Gov. Ducey's Executive Order 2019-03, showing his signature and the Arizona state seal
Page two of Gov. Ducey’s Executive Order 2019-03, showing his signature and the Arizona state seal. (Image: azgovernor.gov)

Arizona Gov. Doug Ducey is ordering three state agencies to do a better job protecting Arizona’s most vulnerable residents. The executive order he issued on Wednesday comes one week after the Arizona Developmental Disabilities Planning Council issued a report calling for the state to implement stronger protections for its residents with disabilities.

Some say the governor’s executive order is a good “first step,” but more work is needed to create policies that adequately protect Arizonans with disabilities who reside in long-term care facilities.

Read more on azcentral.com, or click here to access a PDF of the news story.

Arizona Developmental Disabilities Planning Council releases report on sexual abuse of Arizonans with disabilities

 

2019 ADDPC recommendations on preventing abuse
Cover page of the report produced by the Arizona Developmental Disabilities Planning Council.

The Arizona Developmental Disabilities Planning Council (ADDPC) has released a special report with recommendations for the Arizona State Legislature and Arizona state agencies to prevent sexual abuse of Arizonans with developmental disabilities.

While the recent crisis at Hacienda HealthCare continues to draw attention to problems within Arizona’s current system of monitoring and reporting sexual abuse of people with disabilities, almost no formal policies designed to recognize and prevent such abuse exist. The Council’s report is called “Sexual Abuse of Arizonans with Developmental and Other Disabilities” and it contains specific actions that state agencies and care providers can take to prevent the sexual abuse of vulnerable adults.

Read the ADDPC report: Sexual Abuse of Arizonans with Developmental and Other Disabilities

 

Domino’s Website Required to Comply With ADA Accessibility Rules

A close up photo of the Domino's Pizza app interface.
A photo of the Domino’s app interface on a smartphone. There’s a lack of clarity about how the ADA applies to the modern internet.

On January 15, 2019, the U.S. Court of Appeals for the Ninth Circuit ruled that the Domino’s Pizza website and mobile app must comply with the Americans with Disabilities Act (ADA) and be made fully accessible to people with visual impairments. The court reasoned that the ADA applies to Domino’s digital properties because their inaccessibility “impedes access to goods and services of its physical pizza franchises—which are places of public accommodation.”

A blind customer first sued the pizza chain in 2016, saying he couldn’t order a pizza through its website or app, since neither were compatible with standard screen reading software. And while the legal landscape regarding online accessibility is still uncertain, the Domino’s case may set an important legal precedent regarding the scope of the ADA.

Read more about the case here, or click here to download a PDF of the ruling.

City of San Diego and scooter companies sued by disability rights group

A class-action lawsuit claims dockless scooters violate the ADA because they obstruct sidewalks and other public access areas. This photo shows two Bird scooters parked on a sidewalk.
A class-action lawsuit claims dockless scooters violate the ADA because they obstruct sidewalks and other public access areas. This photo shows two Bird scooters parked on a sidewalk.

Disability Rights California (DCA), a non-profit disabilities rights group, has filed a class-action lawsuit against the city of San Diego and three dockless scooter companies. The lawsuit names San Diego and scooter companies Bird, Lime, and Razor as violating the Americans with Disabilities Act by obstructing the city’s sidewalks, crosswalks, transit stops, and curb ramps. Put more simply, the plaintiffs say the scooters render San Diego’s public walkways inaccessible for people with visual and mobility impairments.

You can read more about the lawsuit online, or download a PDF of this NBC 7 San Diego news article.

New law requires airlines to disclose how many wheelchairs they break

wheelchair at airport

Beginning in January 2019, airline passengers can search the U.S. Department of Transportation website to determine an airlines’ track record of handling wheelchairs and other mobility devices. A new law sponsored by U.S. Sen. Tammy Duckworth, D-Ill., requires air carriers to be more transparent, obliging them to provide monthly reports that are publicly accessible and which detail the number of wheelchairs, checked bags, and motorized scooters lost, broke, or mishandled during flights.

The law was actually passed two years ago, but the Department of Transportation delayed its implementation until Duckworth–a veteran and wheelchair user herself–urged U.S. Secretary of Transportation Elaine Chao to force airlines to make the data — which they already collect each month — available to the public.

Click here to access the article on the Chicago Tribune’s website.