Several recent films produced by Hollywood studios and starring celebrity actors are frustrating disability advocates for their lack of diversity and authenticity. Examples include Todd Haynes’s film Wonderstruck starring Julianne Moore as a deaf woman, David Gordon Green’s Stronger starring Jake Gyllenhaal as a double-amputee, and Andy Serkis’s Breathe starring Andrew Garfield as a polio patient who becomes a quadriplegic. A recent article in USA Today explains why disability advocates are raising awareness about the lack of casting diversity and how filmmakers are responding.
Article excerpt: So what can Hollywood do to give more visibility? Lauren Appelbaum, communications director for RespectAbility, a non-profit organization working to fight stigmas and create opportunities for people with disabilities, urges studios to look to TV, where actors such as Stranger Things‘ Gaten Matarazzo (who has cleidocranial dysplasia, a rare growth disorder) and NCIS: New Orleans‘ Daryl Mitchell (who is paralyzed from the chest down) play roles that don’t hinge on them being disabled.
“Actors with disabilities could easily play roles that neither hide nor emphasize their disability,” Appelbaum says. “For example: a doctor who uses a wheelchair or a scientist with cerebral palsy. By including characters with obvious and hidden disabilities in scripts and story lines, films can create more authenticity within entertainment.”
Today, October 31st, is the last day of National Disability Employment Awareness Month. The goal of NDEAM is to promote resources for employees with disabilities and their employers. Ted Simmons of Arizona PBS recently interviewed Pv Jantz about resources offered by the Arizona Commission of the Deaf and the Hard of Hearing. Jantz, who is deaf, says employers shouldn’t assume what type of accommodation a new co-worker needs. The best approach is to ask the employee what they prefer as an individual. Workers with disabilities tend to be experts on which accommodations best fit their individual needs. Jantz also recommends the website www.AskJAN.org (the Job Accommodation Network) as a resource for employers and employees with disabilities.
Science journalist Rachel Zamzow compiled a helpful list of problems in media coverage of disability-related issues, and how to avoid them. For the article Zamzow interviewed and quotes several disability writing experts including Beth Haller, Steve Silberman, s.e. smith, Julia Bascom, Alice Wong and the NCDJ’s Kristin Gilger. Click here to read the full report.
“Science journalists should also be careful not to veer too far into the narrative of fixing or curing people with disabilities, says Beth Haller, a professor of journalism and new media at Towson University in Maryland. Seek out stories about easing symptoms that come along with a disability instead of only reporting on efforts to decode its cause. “Those kinds of stories are not about a cure, but they’re about improving people’s lives through medicine and science, and it’s not about changing who they are,” she says. For example, a story about a possible treatment for tremors is probably more directly beneficial to people with Parkinson’s disease than one about a series of candidate gene studies, though both have their scientific merits.”
Immigration and disability rights advocates are criticizing U.S. Border Patrol surveillance of a 10-year-old undocumented immigrant in Texas after she was identified at a checkpoint en route to the hospital for emergency gallbladder surgery. According to an article in The New York Times, the girl, Rosa Maria Hernandez, has cerebral palsy and was brought to the U.S. by her parents as a newborn in hopes of getting better medical treatment. Hernandez is currently being held indefinitely at a federal facility for undocumented minors in San Antonio.
Alan Goldstein, a former actor turned award-winning professor at NYU, partners engineering students with people with disabilities to make short documentaries about their lives. The Chronicle of High Education reports on Goldstein’s unique class about “Disabilities Studies.”
Jackie Ward is the mother of a three-year-old daughter with Down Syndrome and a heart defect. She recently became an advocate for disability rights after experiencing discrimination from doctors while applying for a heart transplant for her daughter. Ward is now teaming up with Ohio state legislators to pass laws that will give applicants with disabilities more leverage. Check out this article and video interview with Jackie Ward from the Columbus Dispatch.
“A 2008 survey by researchers at Stanford University found that 85 percent of pediatric transplant centers consider neuro-developmental status in the eligibility process at least some of the time, Hansen said. And in the same study, 62 percent of the centers said eligibility decisions based on disability tended to be made informally, making discrimination difficult to show.”
The U.S. Department of Education and Secretary Betsy DeVos were criticized Friday after announcing news they rescinded 72 guidance documents related to education policies for students with disabilities. according to the Washington Post, the document purge was prompted by President Donald Trump’s initiative to reduce unnecessary federal government regulations. After Friday’s announcement raised alarm amongst disability and education advocates the Dept. of Education released a followup list of explanations saying the documents were “outdated, unnecessary or ineffective.” Click here to read the Washington Post’s full report.
A Chicago Tribune investigation into the mistreatment of disabled adults in Illinois group homes won the top honor in the 2017 Katherine Schneider Journalism Award for Excellence in Reporting on Disability, the only journalism awards competition devoted exclusively to disability reporting.
In “Suffering in Secret,” Tribune reporters Michael J. Berens and Patricia Callahan identified more than 1,300 cases of documented harm since July 2011 in Illinois’ taxpayer-funded group homes and their day programs. The reporters uncovered at least 42 deaths linked to abuse or neglect in group homes or their day programs and uncovered state records of residents fatally choking on improperly prepared food, succumbing to untreated bed sores and languishing in pain from undiagnosed ailments.
Second place went to the Brian M. Rosenthal of the Houston Chronicle. Third place was awarded to Mona Yeh, Sonya Green and Yuko Kodama for reports aired on Seattle-Tacoma public radio station 91.3 KBCS, and honorable mention went to Belo Cipriani of The Bay Area Reporter.
“PBS NewsHour” anchor Judy Woodruff, who served as a judge, noted that the Chicago Tribune’s investigation had real consequences in Illinois, where state officials vowed increased transparency and oversight of taxpayer-funded group homes and legislators are considering laws to force reforms. The license of one group home provider highlighted in the series was revoked, and residents were moved to other facilities. “The amount of time that went into this project and what the reporters were able to uncover just blew me away,” Woodruff said.
The three-part series was a finalist for the 2017 Pulitzer Prize in Investigative Reporting as well as the winner of the Worth Bingham Prize for Investigative Journalism and an Investigative Reporters and Editors Award in 2016.
Berens and Callahan will accept the first-place award and a $5,000 cash prize Nov. 27 at the Walter Cronkite School of Journalism and Mass Communication at Arizona State University, where they also will deliver a public talk on their work. Their appearance, which is part of the school’s “Must See Mondays” lecture series, will be at 7 p.m. in the school’s First Amendment Forum. It is free of charge and open to the public, and sign language interpreting and captioning services will be provided.
The second place Schneider award and a $1,500 prize were awarded to Rosenthal of the Houston Chronicle for an investigation that revealed how Texas officials systematically denied special education services to thousands of children. The seven-part series, “Denied,” found that Texas placed a cap on how many children could receive special education services, saving billions of dollars but denying services to children with disabilities ranging from epilepsy and blindness to autism and attention deficit disorder.
Judges said they were shocked by Rosenthal’s revelations. The state’s actions, they said, showed a complete disregard for children with disabilities and their families.
Third place and a $500 prize went to Yeh, Green and Kodama for two radio pieces chronicling the experiences of one wheelchair user trying to navigate public transportation in Seattle. “Dorian Wants Transit Policy Toward Disabled Persons to Change,” aired on the Seattle-Tacoma public radio station 91.3 KBCS and was supported by the Association of Independents in Radio.
Cipriani, who is blind, received an honorable mention and a $250 prize for a series, “Seeing in the Dark,” published in the Bay Area Reporter. Cipriani writes about the disabled community in the Bay Area, challenging stereotypes about disability ranging from sex to parenting.
Judge Tony Coelho, a former six-term U.S. congressman from California and the primary sponsor of the Americans With Disabilities Act, said Cipriani is an important voice and one of a growing number of people with disabilities who are “writing about the everyday lives of people with disabilities.” Too often, he said, reporting on disabilities is “about us” rather than “by us.”
In addition to Coelho and Woodruff, the judges for this year’s contest were Pulitzer Prize-winning former Washington Post reporter Leon Dash, now Swanlund Chair Professor of Journalism at the University of Illinois at Urbana-Champaign, and Jennifer Longdon, a Phoenix-based writer, speaker, advocate and policy adviser on issues related to disability.
The Schneider Award was established in 2013 with the support of Schneider, a retired clinical psychologist who has been blind since birth and who also supports the national Schneider Family Book Awards. The reporting contest is administered by the National Center on Disability and Journalism at the Cronkite School.
Since 2013, the top Schneider Awards have gone to Ryan Gabrielson of California Watch, Dan Barry of The New York Times, Heather Vogell of ProPublica and Chris Serres of the Minneapolis Star Tribune.
Judy Woodruff received the Walter Cronkite Award for Excellence in Journalism today during a ceremony in downtown Phoenix. The annual award is given to a prominent journalist who embodies the integrity and impeccable professionalism of Cronkite himself. This year’s award was given to Woodruff and her late PBS NewsHour co-anchor Gwen Ifill. Ifill’s brother accepted the award on her behalf.
Woodruff also thanked the National Center for Disability Journalism for its work promoting awareness of disability stories. Listen for Woodruff’s kind remarks about the NCDJ and its director Kristin Gilger at minute 4:07 of her speech.
An investigative report by Rachel Aviv in The New Yorker reveals how elderly citizens can become involuntary victims of private government contractors hired to manage their financial assets. The ambiguous mental health of some elderly patients exacerbates their ability to defend their possessions and right to autonomy.
